Functional evaluation of children with disabilities: contextual and family factors for child development
DOI:
https://doi.org/10.33233/fb.v21i2.2424Keywords:
children with disabilities, familyAbstract
Introduction: In children, neuromotor dysfunctions cause disabilities and limitations to perform their activities. The evaluation of the functionality allows to know activities performed and conditions of participation in relevant contexts of child development. Objective: To evaluate the functionality of children with disabilities and describe the results in parallel with the contextual factors. Methods: Twenty children from 11 to 144 months participated in the study. The evaluation was performed by unstructured questionnaire and the International Classification of Functioning, Disability and Health, Children and Youngsters (CIF-CJ) instrument and data analysis were descriptive. Results: Predominate males (70%), term births (60%), cesarean type in public hospitals (85% respectively) and 50% presented mild difficulties in relation to Apgar 1 minute. As to the topography, 95% presented pyramidal lesions, predominating quadriplegia. In the functional evaluation the greatest difficulties were the activities of going up and down stairs, walking, running and jumping. The least difficulty was in rolling activity, both in performance and in capacity. Conclusion: The contextual factors when considered carefully could alleviate the problems caused by motor dysfunctions and contribute to improving the quality of life of children with disabilities.
References
Garghetti FC, Medeiros JG, Nuerberg AH. Breve história da deficiência intelectual. Revista Electrónica de Investigación y Docencia 2013;10:101-16. http://revistaselectronicas.ujaen.es/index.php/reid/article/view/994/820
Malta DC, Stopa SR, Canuto R, Gomes NL, Mendes VLF, Goulart BNG et al. Prevalência autorreferida de deficiência no Brasil, segundo a Pesquisa Nacional de Saúde, 2013. Ciênc Saúde Coletiva 2016;21(10):3253-64. doi: 10.1590/1413-812320152110.17512016
Corrêa GC, Santana VC. Avaliação do impacto de uma intervenção de Terapia Ocupacional com ênfase no desempenho ocupacional de crianças e adolescentes com deficiência visual. Rev Ter Ocup Univ São Paulo 2014;25(1):43-50. doi: 10.11606/issn.2238-6149.v25i1p43-50
Ruaro JA, Ruaro MB, Souza DE, Fréz AR, Guerra RO. Panorama e perfil da utilização da CIF no Brasil - uma década de história. Rev Bras Fisioter 2012;16(6):454-62. doi: 10.1590/S1413-35552012005000063
Reis LC, Britto IT, Lessa RS, Freitas SP, Porto TF, Reis LA. Avaliação do desenvolvimento motor em crianças de 0 a 18 meses de idade com baixo peso. Revista Baiana 2009;33(2):153-61. http://files.bvs.br/upload/S/0100-0233/2009/v33n2/a001.pdf
Rosenbaum P, Stewart D. The world organization international classification of functioning, disability, and health: a model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology 2004;11(1):5-10. doi: 10.1016/j.spen.2004.01.002
Ostroschi DT, Zanolli ML, Chun RYS. Families perception of children/ adolescents with language impairment through the International Classification of Functioning, Disability, and Health (ICF-CY). CoDAS 2017;29(3). doi: 10.1590/2317-1782/20172016096
Jacobsohn L. CIF-CJ (OMS): Um instrumento Universal para Avaliar o Perfil de Funcionalidade da Criança. Academia 2014. https://www.academia.edu/25662089/CIF-CJ_OMS_Um_instrumento_universal_para_avaliar_o_perfil_de_funcionalidade_da_crian%C3%A7a
Kovac ML, Simeonsson RJ. Agenesis of the corpus callosum: classifying functional manifestations the ICF-CY. Disabil Rehabil 2013;36(13):1120. doi: 10.3109/09638288.2013.833299
Moriello C, Byrne K, Cieza A, Nash C, Stolee P, Mayo N. Mapping the stroke impact scale (sis-16) to the international classification of functioning, disability and health. J Rehabil Med 2008;40(2):102-6. doi: 10.2340/16501977-0141
Souza NP, Alpino AMS. Avaliação de crianças com diparesia espástica segundo a Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF). Rev Bras Educ Espec 2015;21(2):199-212. doi: 10.1590/S1413-65382115000200003
Medeiros DL, Scalco JC, Liberal M, Concicovski D, Serozini LL, Malacarne JM et al. Utilização da Classificação Internacional de Funcionalidade, Incapacidade e Saúde na avaliação funcional de crianças com paralisia cerebral. Pediatria Moderna 2013;49(12):541-46. http://www.moreirajr.com.br/revistas.asp?fase=r003&id_materia=5572
Hwang AW, Yen CF, Liou TH, Bedell G, Granlund M, Teng SW et al. Development and validation of the ICF-CY - Based Functioning Scale of the Disability Evaluation System - Child Version in Taiwan. J Formos Med Assoc 2015;114(12):1170-80. doi: 10.1016/j.jfma.2015.11.002
Toldrá RC, Souto ACF. Fatores Contextuais da CIF como ferramentas de análise das implicações da deficiência física por pessoas atendidas pela Terapia Ocupacional. Cad Ter Ocup 2014;22(2):347-59. doi: 10.4322/cto.2014.061
Santos W. Deficiência como restrição de participação social: desafios para avaliação a partir da Lei Brasileira de Inclusão. Ciênc Saúde Coletiva 2016;21(10):3007-15. doi: 10.1590/1413-812320152110.15262016
Brandt DE, Ho PS, Chan L, Rasch EK. Conceptualizing disability in US National Surveys: Application of the World Health Organization (WHO) International Classification of Functioning Disability, and Health (ICF) framework. Qual Life Res 2014;23(10):2663-71. doi: 10.1007/s11136-014-0740-6
Araújo ES de, Buchalla CM. Utilização da CIF em fisioterapia do trabalho: uma contribuição para coleta de dados sobre funcionalidade. Acta Fisiatr 2013;20(1):1-7. doi: 10.5935/0104-7795.20130001
Dias ACB, Freitas JC, Formiga CKMR, Viana FP. Desempenho funcional de crianças com paralisia cerebral participantes de tratamento multidisciplinar. Fisioter Pesqui 2010;17(3):225-29. doi: 10.1590/S1809-29502010000300007
Zanini G, Cemin NF, Peralles SN. Paralisia Cerebral: causas e prevalências. Fisioter Mov 2009;22(3):375-81. https://periodicos.pucpr.br/index.php/fisio/article/view/19461/18801
Rothstein JR, Beltrame TS. Características motoras e biopsicossociais de crianças com paralisia cerebral. Rev Bras Ciênc Mov 2013;21(3):118-26. doi: 10.18511/0103-1716/rbcm.v21n3p118-126
Brasileiro IC, Moreira TMM, Jorge MSB, Queiroz MVO, Mont"™Alverne DGB. Atividades e participação de crianças com paralisia cerebral conforme a classificação internacional de funcionalidade, incapacidade e saúde. Rev Bras Enferm 2009;62(4):503-11. doi: 10.1590/S0034-71672009000400002
Machado FN, Machado NA, Soares SM. Comparação entre capacidade e desempenho: um estudo sobre a funcionalidade de idosos dependentes. Rev Latinoam Enferm 2013;21(6):1321-29. doi: 10.1590/0104-1169.2682.2370
Morettin M, Cardoso MRA, Delamura AM, Zabeu JS, Amantini RCB, Belivacqua MC. O uso da Classificação Internacional de Funcionalidade, Incapacidade e Saúde para acompanhamento de pacientes usuários de Implante Coclear. CoDAS 2013;25(3):216-23. doi: 10.1590/S2317-17822013000300005
Mei C, Reilly S, Reddihough D, Mensah F, Green J, Pennington L et al. Activities and participation of children with cerebral palsy: parent’s perspectives. Disabil Rehabil 2015;2164-73. doi: 10.3109/09638288.2014.999164
Lindsay S. Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review. Child Care Health Dev 2016;42(2):153-75. doi: 10.1111/cch.12309
Darcy L, Enskar K, Granlund M, Simeonsson RJ, Peterson C, Bjork M. Health and Functioning in the everyday lives of young children with cancer: documenting with the international classification of functioning, disability and health-children and youth (ICF-CY). Child Care Health Dev 2015;41(3):475-82. doi: 10.1111/cch.12191
Anaby DR, Law MC, Majnemer A, Feldman D. Opening doors to participation of youth with physical disabilities: An intervention study. Can J Occup Ther 2016;83(2):83-90. doi: 10.1177/0008417415608653
Field DA, Miller WC, Jarus T, Ryan SE, Roxborough L. Important elements of measuring participation for children who need or use power mobility: a modified Delphi survey. Dev Med Child Neurol 2015;57:556-63. doi: 10.1111/dmcn.12645
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