Early gastrostomy associated with speech therapy in patients with amyotrophic lateral sclerosis
DOI:
https://doi.org/10.33233/fb.v19i3.2437Abstract
Amyotrophic Lateral Sclerosis (ALS) is a degenerative disease that occurs with the deterioration of motor neurons. The beginning of clinical impairment may be bulbar with the average life time, after the first symptoms, between 2 to 5 years, presenting serious swallowing, speech and breathing disorders. Deglutition disorders can lead to malnutrition, dehydration, aspiration, displeasure, and more serious complications such as aspiration pneumonia and death. With the evolution of the disease, the patient needs procedures that generate doubts in the professionals and family, as the correct moment of indication of the use of alternative long-term feeding routes called gastrostomies (GTT). The objective of this article is to analyze the impact of dysphagias and the most favorable moment for the placement of gastrostomies. Early GTT placement may help prevent the patient from clinically debilitating more quickly, respond better to multidisciplinary team therapeutics, and feel more comfortable.
Key-words: dysphagia, enteral nutrition, gastrostomy, deglutition disorders, motor neuron disease, amyotrophic lateral sclerosis.
References
Güell MR et al. Atención integral a pacientes con esclerosis lateral amiotrófica: un modelo asistencial. Arch Bronconeumol 2013;49(12):529-33.
Xerez DR. Reabilitação na esclerose lateral amiotrófica: revisão da literatura. Acta Fisiátrica 2016;15(3):182-8.
Brasil. Conselho Federal de Fonoaudiologia. Resolução CFFª Nº 356, de 6 de dezembro de 2008. Dispõe sobre a competência técnica e legal do fonoaudiólogo para atuar nas disfagias orofarÃngeas. DOU 04.08.2010 DisponÃvel em: http://www.fonoaudiologia.org.br/cffa/index.php/resolucoes/
Simon NG, Huynh W, Vucic S, Talbot K, Kiernan MC. Motor neuron disease: current management and future prospects. Intern Med J 2015;45:1005-13.
Zhang L, Sanders L, Fraser RJL. Nutritional support teams increase percutaneous endoscopic gastrostomy uptake in motor neuron disease. World J Gastroenterol 2012;18(44):6461-7.
Johnson J et al. Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding. Amyotroph Lateral Scler 2012;13(6):555-9.
Marsden R et al. Nutritional pathway for people with motor neurone disease. British journal of community nursing 2016:21(7).
Benstead T, Jackson-Tarlton C, Leddin D. Nutrition with gastrostomy feeding tubes for amyotrophic lateral sclerosis in Canada. Can J Neurol Sci 2016; 1-5
GarcÃa IJ et al. La opinión del paciente cuenta: Experiencia en la atención nutricional en un equipo multidisciplinar de ELA. Nutr Hosp 2015;31(S5):56-66.
Kak M et al. Gastrostomy tube placement is safe in advanced amyotrophic lateral sclerosis. Neurol Res 2017;39(1):16-22.
Kühnlein P, Gdynia HJ, Sperfeld AD, Lindner-Pfleghar B, Ludolph AC, Prosiegel M, Riecker A. Diagnosis and treatment of bulbar symptoms in amyotrophic lateral sclerosis. Nat Clin Pract 2008;4(7):366-74.
Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, Pradat PF, Silani V, Tomik B. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol 2005;12:921-38.
Majmudar S, Wu J, Paganoni S. Rehabilitation in amyotrophic lateral sclerosis: why it matters. Muscle Nerve 2014;50(1):4-13.
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